Blogging in B Minor

Well, I am in the exact same place I have been with the added component of one of my medications used to control seizures, topomax, adding some additional fatigue. I’m trying to dig myself out but it’s a battle. I’m seeing my medical oncologist today which is good. I’m sticking with the program – 7 on and 7 off with the Temodar. Rachael and I don’t want to give up on the plan yet. And the alternative is 5-days a month and that’s a 400mg dose per day over the 5 days which isn’t exactly appealing. No matter what you do you have to walk forward.

It’s strange – it just makes you feel like your sinking. I went to bed the other night at 7:30pm and woke up the next morning at 7:00am – and I was still tired. It’s that sort of thing.

We will get it figured out. My goal and prayer is that I will acclimate to this. That some of this is the radiation recall phenomena that I have talked about. Whatever it is, I need to get to the other side. I’m hopeful that today I can get some pointers from my oncologist…

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