Turned the Corner!
My Story 1 Comment »After feeling awful for the better part of 5 weeks, I am finally feeling better! On Thursday I was really starting to feel somewhat normal – it was a day after coming off of a week on chemotherapy so I wasn’t sure if it was tied to that or not. Of course, the last week on transitioning into a week off had no effect – I spent that weekend completely out of commission. So, I had a good weekend and actually went out for a nice dinner on Saturday night, food tasted good, I had energy and I’m not sure what to think it’s been so long but I will take it. On Sunday I played soccer in the backyard with Aidan. Saturday he and I went and picked up plants and some other items. Completely different situation…
I really have to believe at this point that this is radiation recall. How I am feeling now is more reminiscent of how I felt before on Temodar while going through the 6 weeks of radiation. I had three occasions while going through radiation that I felt this same bad feeling that I have felt over the past 5 weeks but the episodes only lasted for several days. Therefore the radiation recall theory really makes sense. I start up again on chemotherapy for a week on Thursday night so I will certainly be able to judge a lot more come the following week.
I cannot explain how good it feels to feel normal. To be disinterested in food and even have water taste bad is the most frustrating and awful experience but it comes with this. I didn’t like it but I also had to look at it as best I could positively. I don’t think I would have been able to go past the 8 week mark without moving to a 5-day pulse chemo regimen – but as it turned out that would make no difference. This is also unpredictable. I could have other radiation symptoms return – at 6 months, a year. It’s unpredictable but now I have experienced this and know what to look for.
I’m looking forward to the Thanksgiving Holiday. I’m just going to spend a quiet holiday with family. I have a lot to be thankful for. I’m blessed with many things and as our pastor has said so many times, if you have change in your pocket, a place to live and food on your table you are wealthier than 99% of the world’s population. How we can forget as we are a product of what society has created so often.
At the moment, I’m very thankful I am feeling good and we have some normalcy in life.
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