Blogging in B Minor

There is a certain compounding effect of chemotherapy that seems to be taking place the longer I am on Temodar.   I believe I have mentioned before in this blog that at the end of a 7-day “on” period I become much more fatigued and it seems to take me a little bit longer to recover.  It seems to take just a little bit longer as time moves on and at the end of the cycle I feel just a little bit more under the weather.  When this first started to happen, I mistakenly thought it was the “radition recall” phenomena creeping back into the mix that was so difficult to deal with back during October and November.  However, it’s not – it’s just fatigue from the Temodar at the end of each 7-day dosing.  I have read that it becomes a little been harder, I just didn’t think it should happen at this point.  However, most people are on a 5/23 regimen, meaning they take it for 5 days a month and are off it for 23.  So, since I am on the drug 14 days each month and off 14, at this point I have 3 cycles under my belt which is 42 doses.  The 5/23 would put you at 15 doses.  Now the 5/23 is a higher dose but I am just thinking that being on the drug more consistently is having a more consistent effect on my body.

The good news is that my blood work is good.  My white count is down but my overall scoring is good and not in a range where it is a concern.  I have had a number of focal seizures but as always I just handle those as they occur.

That’s it for now.  There have been quite a few people that have emailed me lately with newly diagnosed brain tumors or with loved ones that have been newly diagnosed.  I pray for all of you and my wife and I know exactly what all of you are going through.  There is a shock to this news – in time you surrender and accept it and you attack the problem.  As always, I’m happy to answer questions and provide you with what support I can.  This site also has resources – there are links down the left side under “Brain Tumor Resources” that will find helpful and the “Library” area of the site has a lot of useful documents and information. 

Best regards,

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