Blogging in B Minor

It’s been awhile since I’ve posted – mostly because I’ve just been busy this week with the kids and obligations. Next week is going to be very busy. I have an appointment with my neurologist and oncologist. I haven’t had a simple partial seizure for awhile though which is great news! So, my medication levels with regard to Lamictal and Topamax, the two anti-seizure medications I take to control them seem to be adequate.

Aidan and I had a really fun time last Saturday and I have posted some pictures here. I have posted before about how he earns “tokens” when he exhibits certain behaviors we are wanting to instill in him such as listening the first time, picking up his toys, praying by himself, etc. Once he reaches 10 tokens, he gets to have a reward which is not material in nature. So, he chose ice skating! There is a great rink not too far from our house. They have two NHL regulation sized rinks and on Saturday mornings they have public skates from 10-noon. It is hilarious seeing all the kids skate around with the “walker-like” devices. These are a great invention – they are similar to walkers people who are older use but slide on the ice and allow the kids to get used to the feel of the ice. Aidan was tentative at first but he is fearless so after about 5 minutes he was trying to skate fast, spinning in circles and wanted to race me. He is so funny – he will try anything at all. Of course he wanted to try it without the walker so I skated away from him several times – about 5 or 10 feet and he would fall. Not wanting to be seen in that position he would try to get up really fast and fall again! I told him to just slow down and helped up off the ice and back to the wall. It was so fun though – he and I just had a great time. He had such a good time that he wants to do that for his next “reward”. We of course do things outside of the reward system but we set up some special things like this as motivation. The tokens he earns are cool colorful magnets that he gets to put on a board in rows next to magnets that have labels with the behaviors written on them.

So how fun! It was a great example for us of spending quality time together. These are the moments that I really cherish and again, it wasn’t that I didn’t before but as a brain tumor survivor they take on a different meaning. Honestly, none of us really knows how much time we have left but I do know that I have a serious health condition. Brain cancer is not something that you survive into your 70s and 80s! So, I take each moment like this and soak it up. What a great day we had!

Subscribe by Email RSS Subscription