Comments on: The Complex World of Brain Tumor Treatment http://www.markmillermusic.org/blog/2008/03/02/the-complex-world-of-brain-tumor-treatment/ a brain tumor story. Thu, 17 Nov 2011 00:59:25 -0600 http://wordpress.org/?v=2.9.1 hourly 1 By: Mark http://www.markmillermusic.org/blog/2008/03/02/the-complex-world-of-brain-tumor-treatment/comment-page-1/#comment-82 Mark Mon, 03 Mar 2008 18:53:30 +0000 http://www.markmillermusic.org/blog/2008/03/02/the-complex-world-of-brain-tumor-treatment/#comment-82 <p>Michael,</p> <p>For me and based on when I sleep (I'm a morning person and typically go to bed somewhere around 10pm), I take Temodar around 9:30pm to 10:00pm - as close to when I think I'll go to sleep as possible. I take the anti-nausea pill (for me that is Zofran) approximately 1/2 hour to 45 minutes prior to my chemotherpy. I make sure that the last food I have had is at least 1.5 to 2 hours prior to taking the Zofran. This system has worked great for me. I go to sleep and don't feel much at all. During the time when I was going through radiation, I did feel fatigued throughout but I acclimated. Around week 2, 4 and 6 I had a few days that I didn't feel great but I can't attribute it to one or the other.</p> <p>Now that I am on an alternating 7-day regimen and plan to stay there as I've posted. I just keep the same system that I have indicated above. I still watch my diet as much as I can (I do cheat!). In the library under the "Library Tab" there is a document that contains a lot of information about diet during radiation and chemotherapy that you may find familiar.</p> <p>My best to you - you will move through radiation and chemo just fine. Keep me posted!</p> <p>Mark</p> Michael,

For me and based on when I sleep (I’m a morning person and typically go to bed somewhere around 10pm), I take Temodar around 9:30pm to 10:00pm – as close to when I think I’ll go to sleep as possible. I take the anti-nausea pill (for me that is Zofran) approximately 1/2 hour to 45 minutes prior to my chemotherpy. I make sure that the last food I have had is at least 1.5 to 2 hours prior to taking the Zofran. This system has worked great for me. I go to sleep and don’t feel much at all. During the time when I was going through radiation, I did feel fatigued throughout but I acclimated. Around week 2, 4 and 6 I had a few days that I didn’t feel great but I can’t attribute it to one or the other.

Now that I am on an alternating 7-day regimen and plan to stay there as I’ve posted. I just keep the same system that I have indicated above. I still watch my diet as much as I can (I do cheat!). In the library under the “Library Tab” there is a document that contains a lot of information about diet during radiation and chemotherapy that you may find familiar.

My best to you – you will move through radiation and chemo just fine. Keep me posted!

Mark

]]> By: Michael Smith http://www.markmillermusic.org/blog/2008/03/02/the-complex-world-of-brain-tumor-treatment/comment-page-1/#comment-81 Michael Smith Mon, 03 Mar 2008 18:26:45 +0000 http://www.markmillermusic.org/blog/2008/03/02/the-complex-world-of-brain-tumor-treatment/#comment-81 Hey Mark - Thanks again for such a great blog and source of info. I start my radiation and chemo on Monday the 10th. Yeah I'm a bit nervous and totally relate to how every professional we talk to "has the right plan". I am also sticking to the "tried and true", but for us there really isnt one is there? More of a "so far its worked well" thing. lol. Well it looks like 6.5 weeks of radiation with daily temodar. Any suggestions on when to take the pill? The Doc said to experiment as far as side effects. Hope your having a good day - my best to you and your family. Hey Mark – Thanks again for such a great blog and source of info. I start my radiation and chemo on Monday the 10th. Yeah I’m a bit nervous and totally relate to how every professional we talk to “has the right plan”. I am also sticking to the “tried and true”, but for us there really isnt one is there? More of a “so far its worked well” thing. lol. Well it looks like 6.5 weeks of radiation with daily temodar. Any suggestions on when to take the pill? The Doc said to experiment as far as side effects. Hope your having a good day – my best to you and your family.

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