Stable MRI!
MRI March 25th, 2008
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My MRI came back as stable disease again! Needless to say I am so happy. My Neuro-Oncologist has indicated that to have stable MRIs like this is a great sign. Considering I have been tracking this since 12/2006 and I intervened in 6/2007 by choice with surgery, IMRT radiation and now 6 months of chemo and a very deliberate, well thought out set of supplements, I feel very good about the plan and path I am on. A grade 3 tumor is an aggressive tumor and that coupled with a 0% resection – well, I felt that my odds were stacked out of the gate but I didn’t hold on to thought for long. I’m here and by the grace of God we’ll continue on one day at a time. And I’ve said it before – the tasks ahead of me are never greater than the power behind me.
It’s getter late for me given my fatigue lately (who would think that 8:30pm is late!) but I’ve been sleeping a lot for the last 3-4 days. But thank you SO much for all of the emails and the several comments posted here – your thoughts and prayers mean everything and they absolutely make a difference. Thank you Thank you!!!
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Mark,
Congratulations on the results of your chemo! I’m so glad for you! While looking for a picture of a craniotomy on the Internet did I come across your comment on the blog of Jon Lustig which prompted me to go to your blog.
What an impressive and positive blog you’ve created, full of extremely useful information. Thanks so much. You’re ahead of me (my first surgery is planned for the 24 of April 2008, I for sure have a grade 2 Glioma which is likely to be a grade 3 as well) and this is very helpful.
Cranius
I just found your site and I’m glad I did. Congratulations on your good news. I have worked for years with people dealing with cancer and other illnesses and there is no doubt in my mind that attitude plays a big role. My sister also survived a brain tumor and even though in some ways she is still struggling her sense of humor is beyond belief.I hope the good news keeps on coming.
I actually turned on to your site because of the music connection.Then I found out about your treatment. I am also a musician.(Got a BA in classical piano and played jazz for years in clubs and then my daughters got into musical theater I got involved in that. When you get a chance go on youtube and click in sctshep in the search box. I’ve got a few videos with some of my own music. Some are inspirational, one is funny and one I did for people who have lost loved ones.My youngest daughter, Sara, is singing. She is graduating this month from Cincinnati Conservatory of Music in Musical Theater. She’s a joy.
I’m going to read some of your posts and find out more about you. Best to you in the future.
Mark,
Thans be to God, he is listening and I know you will get through this, you come from a stong blood line. I just recieved your CD that I ordered on Sunday, Wow it is beautiful. Thank you for finding a taking the time to cut this CD. It means an awful lot to me.
Beverly
Good morning Mark, glad to hear you are taking some time off from the chemo, I ordered another CD for my mother in law. When she found out you had one she asked if I would send her one. I’m sure I will be getting more people interested in your music, and by all means please continue singing, it is good for you and it means alot to the rest of us.
Take care and we are praying for you and your family and hug them babies for us.
Beverly
Thanks so much for all of your support. Your comments and the many emails I have received mean so much to us. I’m in the process of having Dr. Mitchel Berger at UCSF perform a film review on my scans going back to my first post-operative scans to the most current and am also having the UCSF Department of Neuro-Oncology perform a complete case review. As I’ve posted before, obtaining multiple opinions is key. In my case, the UCSF and Harvard opinions at a minimum clinched the decision to have surgery and were the reason we found out that this was a grade 3 situation and not a low grade tumor.
More to come in some future posts…
Mark