Supplements
Nutrition April 28th, 2008
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I’ve talked quite a bit about supplements in the past so I thought I would post a nice picture of the supplements I take on a daily basis. These have changed since I have completed radiation of course but the documentation in the resource library will give you a run-down of everything I have done. The previous links will show you the pics. Here is a quick list – obviously these are on top of lamitil, topomax, pepcid and a few other prescriptions that I take. Suffice it to say that my daily intake of pills is ridiculous!
Starting from left to right in the picture:
- Peppermint Complex (digestive)
- Boswellia (frankencense – anti-inflammatory)
- Super Antioxidants – click the link for the supplement facts on the type of Antioxindant that I take. The essentials here, among others, are selenium, zinc, N-Acetyl Cysteine, CoQ10, Grape Seed Extract.
- One-a-Day Multi-Vitamin
- Aloe Vera Gel – Digestive Tract
- Temodar 140mg – Chemotherapy. For my dosing it’s 280mg a night – I’m doing 1 week on / 1 week off. I’ll continue through 12 cycles.
- Probiotics – Acidopholis
- Fish Oil – 1000mg – Omegas – Important for brain tumor treatment, breaking down blood brain barrier.
- CoQ10 – additional dosing
For me and based on my research, this is what I’m doing. I’m not a doctor nor a nutritionist so I don’t advocate “copying” what I do. This is what I have been doing since I’ve gone straight on to just chemo. I have had stable scans. Can I attribut them to this regimen and the chemo? I have no idea. For all I know I could be doing none of this, including chemo and still have stable scans. However, I’m going to do eveything I can, based on my research, to make things right and fight the fight!
As an addendum, here is video called Nutritional and Herbal Strategies to Complement Conventional Brain Tumor Treatments by Jeanne Wallace, PhD, CNC. It’s about 40 minutes long and focused on diet and supplements
http://video.google.com/videoplay?docid=-8203376527577997655That’s my supplement post – been meaning to do it.
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What did you find more helpful, while you were doing your research into supplements, etc: information from text or talking to people? (I tend to be a text-based lifeform, but I’m not against changing if the information is better the other way *g*).
Barbara, I am a speedsearcher! Meaning, I could never talk to people as fast as I want to solve problems and find answers. So, that leaves me with the power of the internet and what a beautiful thing that is. However, I cannot stress enough that for me, how important it is to network and connect with other brain tumor survivors. Sharing experience, strength and hope with each other is healing. There are people who have walked in my shoes long before me. I am walking a road that others will walk – people are finding this site and sending me emails every day with questions about starting radiation, having surgery, etc.
So, for me, the system I employ is a) scouring the internet and finding data that is authoritative and legitimate (important points!!), b) assembling the data/research into a logical format and c) synthesizing this down into an actionable plan that I can implement. Finally, I network with others and exchange ideas based on our collective research.
Don’t mean to get all scientific on my audience here but when it comes to this stuff, I really just break this stuff down and get down to business! I hope this helps.
Mark
Don’t mean to get all scientific on my audience here but when it comes to this stuff, I really just break this stuff down and get down to business! I hope this helps.
That’s my research method as well, so it’s heartening to know that it works here, too, and results in solid and applicable outcomes.
Thanks for the feedback *tips hat*
Much appreciated!
You are an inspiration! I have an Oligoastrocytoma grade 3. Had surgery, which couldn’t not be totally resected. I came out of surgery with seizures and hemiparesis on my left side. I was in the hospital for a month- Rehabilitaion. Went through radiation with chemo (Temodar)for 6 weeks, had 4 week break. Started chemo again at a higher dose- 6 month regimen. 1st 5 days every 28 days. My last one is this month- May 12-16. I have found it difficult to be positive….I hate leaving the house- being in social situations. Guess I am very insecure about the way I look now. Anyway… thank you for setting a higher standard for us all. God Bless!
Cassi,
Congratulations on completing your chemo!! That is fantastic!! Cassi, you have everything in the world to be positive about and that is the gift of life – the gift of knowing that people like you are here and share a common bond and reaching out is all it takes to connect. Don’t ever hesitate to contact me if you’d like to connect and exchange emails. I’m always happy to listen.
Keep going! Sounds like you are doing great and you, my friend, are an inspiration – and by posting here you are showing many others that this can be done – what you have faced can be faced – and you can come out the other side. What a gift your testimony is to others.
Mark