Feeling Much Better
Chemotherapy, Brain Tumor August 6th, 2008
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What a difference being off of chemotherapy makes. You have to do what you have to do, no doubt about that, but once your dues are paid for that time it sure is nice to have the break. I actually feel like a normal man for the first time in about a year. I did ok on chemo. I worked, I even worked during the last 2 weeks of my radiation treatments and went and had them during lunch hour. I had fun with my family - went skateboarding with my son (something I hadn’t done myself in 25 years but picked back up like riding a bike) so it’s not all bad. However, the fatigue is the most significant battle.
Making a list on Friday for the weekend - just a to-do list and then following through and not being able to finish it was frustrating. I would only partially complete a list and then have to take a nap. Many times I was done for the day. Sunday we would go to church in the morning and I could get a few more things done but would have to take another nap. Anyway, just it’s something I just learned to deal with and accepted. It sure is nice now though! I’m starting to feel more energy which is great.
As far as being immuno-suppressed, my doctors say it will be 6 months before my immune system is fully recovered from the chemotherapy. I can tell - I’m still walking around with occasional nasal congestion and so forth but all in all things are getting progressively better. Now it’s a matter of watching myself for any symptoms and scanning. I’m going to enjoy life. My wife and I were talking last night and there is always the anxiety that comes up - and the almost surreal feeling that this is all happening but things happen to people all the time. We are pretty much over all of that part of it. The real anxiety that we struggle with still, we realized, is more acute and is around MRI time we have gotten more used to dealing with it over time. We’ve been doing this for nearly 2 years now and it’s been over a year since my surgery.
That’s it for now. We’re going to Victoria, British Columbia on a vacation here soon. Our kids will stay here with their grandparents so it will be nice to get away. It’s the first time we’ve really had a get away since we were in Paris several years ago and that seems like an eternity!
Will check in soon here..thanks to all of you who have sent emails and well wishes. As always, they are so much appreciated!
Cheers,
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, chemotherapy 
August 11th, 2008 at 1:14 am
Hi there! Thinking of you. How are the kids and Rachel? Skateboarding! I am impressed. How is work? Having fun? heading to Salt Lake City in 2 weeks for a conference…connecting thru LA on the way back- I think (for a red eye..) are you close to San Fran airport and would you be up for a short airport visit? I can connect thru any major west coast airport adn I can cab over if time permits. How was your vacation! BC is lovely- nice to get away….kids will enjoy grandparents more than you know. Soccer Aidan! way to go…we are also soccer here with the youngest and it is fun- forces me to stop and smell the roses…and get some sun! enjoy the rest of the summer and let me know how you feel about a visit- maybe I get to meet Rachel and the boys….hugs to all.