UCSF Appointment
Treatment Options, Brain Tumor November 6th, 2008
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We are all set with UCSF and our appointment tomorrow at 11am. I picked up my pathololgy slides yesterday and CDs that contain about 15 MRIs. The rest of the data was sent to UCSF by the Neuroscience Institute (dictations, sugical reports, etc). UCSF has a number of trials taking place at any given time including some that are vaccine-based.
Of course, the purpose of this consult is to continue building a strategic roadmap for my treatment plan. I need to have this in place. I’m used to operating this way in life anyway, albeit mostly in business. Regardless, I’m not going to find myself in the middle of the DCVax-Brain vaccine trial, have something go wrong - whatever that might be, and then be forced to figure out what’s next or fall back on the standard of care. That is the worst case scenario - being forced to make a monumental decision on a dime. So, to have this somewhat figured out, exploring the landscape, having a sense of what is out there makes a lot of sense and will feed the plan.
I’ll certainly post some good information about the appointment over the weekend.

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November 7th, 2008 at 9:12 am
I have BEEN DIAGNOSED WITH A GBM AND HAD SURGERY IN N.Y. I AM CURRENTLY UNDERGOING TREATMENT WITH TEMODOR AND RADIATION AND HAVE 11 MORE TREATMENTS TO GO.
I APPRECIATE HEARING ABOUT YOUR EXPERIENCE AT UCSF AND WHAT THEY HAVE TO OFFER.
THANK YOU AND GOOD LUCK!