Blogging in B Minor

It has been a few days since I’ve posted – there has been so much going on.  All of these starts and stops were driving me crazy with the Chemotherapy.  The lab, of course had to make sure they had enough white blood cells from the leukopheresis process so they can make enough vaccine.  They did a 0-day check when they received it and then they had to do a 7-day check.  I was all queued up for a week ago Monday but given it was a holiday we never heard on that previous Friday.  I found out at 11:30am that Monday that it was off – 30mins before I was to start!

So, we thought we’d find out surely by the end of last week.  Nothing.  This is so par for the course.  Meanwhile, I’m getting nervous again because I have a GBM and time is passing.  The short of it is we finally received confirmation on Tuesday and carried out the infusion on Wednesday.  For me, adding the Irinotecan didn’t produce too much of a gastrointestinal issue – this seems to be a big deal for many patients.  However, fatigue has really set in today – moreso today than yesterday.  Other than that I’m doing ok so far.

 I’ll have the same infusion in 2 weeks and then we’ll hold treatment and obtain the vaccine.  Unless something happens (and who knows here), we’ll then start the vaccine treatments in conjunction with Avastin most likely.  It seems like a logical combo.

More to come very soon.

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