Slowly
Medications, Recovery March 2nd, 2009
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I went to my GP and based on everything we believe I have bronchitis or pneumonia. Who would have thought? NO idea about the headaches. My blood pressure has been fine so that’s still a mystery at this point given the MRA was fine.
To address the bronchitis I started a regimen of Zithromax on Thursday and have been down and out since then but slowly feeling better. Today is actually the best day I’ve had in a long while and I’ll say I’m at 50% or so. I made a decision that I just can’t keep getting up and going to work – I had to take some time to let my body rest so I took Friday, today and may also take tomorrow. I just always keep going as I did during radiation and after my second surgery – I was back at work six weeks post-op. I can’t keep doing it though. My body is telling me to slow down so that’s what I’m doing. I guess I’m stubborn – it took thinking and feeling the effects of a recurring grade 4 tumor, headaches, bronchitis and the aftermath of having a wisdom tooth extracted on top of trying to continue working for me to admit that I had to slow down! So, some time off is good.
I have an appointment with my Neuro-Oncologist on Wednesday morning and we will determine the course of action which should be an Avastin infusion – WEDNESDAY. I have to get back on treatment. The clock is ticking and time is not my friend. I am taking Valcyte but I need to be doing more – a lot more. Also, the vaccine is there but we are working through very frustrating red tape. Hopefully that is finished soon.
That’s it for now. Thank you so much for all the prayers. Everyone has been so supportive. I think I just hit a streak of multiple issues here.
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Mark, keep up the fight. I have been following your blog for quite some time. My husband, Marc from Baton Rouge, LA, has been enduring the fight also. Surgery, radiation and now Temodar for treatment of Anaplastic Astrocytoma 3. His fight has really just begun. He does another MRI at the end of this mos. The last MRI showed suspecious spots 4 wks after radiation so we are anxiously awaiting this MRI. You are a fighter and a writer. We need to hear from you. I am praying everyday for a cure. I am praying for you and your family. Your strength is amazing. May God Bless You. Stacey
Missing you at work. Wanted you to know I was thinking about you and praying for you.