Third Vaccine Treatment
Chemotherapy, DCVax 8 Comments »I went in for my third vaccination series yesterday. I obviously can’t say for sure what is helping, but I have more energy than I’ve had in a long time – think I mentioned this. I’m taking valcyte, thalidomide, the vaccine (DCVax-Brain) and will still be seeing results from the gamma knife (both positive as well as swelling which could result in swelling and certainly explain the seizures). One thing is for sure – I haven’t felt this good in a long time.
I have completed day 0, day 10 and day 20. My next vaccination is 8 weeks from now on May 27th. The schedule wasn’t laid out for me very clearly at first but this is when it starts spreading out. I will be having an MRI here in the next 3 weeks or so and I should have some good information at that point because the aftermath of the gamma knife surgery will have cleared up much moreso than when we had the last MRI. Interpreting the images will be much easier.
It is so great to be in a routine for now. There was so much up in the air. So, this side is ok but now I have to tackle the seizure issue and talk strategy with my Neurologist. I’m about maxed on the Keppra so we may need to look elsewhere. I have two other meds that also control this so perhaps another combo is in order. It’s somewhat of a constant job staying on everything but if I do these things and pay attention to everything – and act on what I need to do – I can ensure that the time I have with my kids and family can be fulfilling.
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