Comments on: Third Vaccine Treatment http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/ a brain tumor story. Thu, 17 Nov 2011 00:59:25 -0600 http://wordpress.org/?v=2.9.1 hourly 1 By: Mark http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-314 Mark Thu, 11 Jun 2009 04:43:18 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-314 I was fortunate enough to get on board just before they had put it all on hold. I'm on a compassionate use path with them which is good but I'm not sure how much they have done in this area. I know they plan to. It's too bad that we have all of this government stimulus funding going, in some cases, to what I view as questionable initiatives/objectives when there are all kinds of needs that have to be met and cannot be without that funding. I wish I could be of assistance. My best advice, however, is to get in touch with Linda Liau (sp?) at UCLA. She runs their trial and is very on top of this. Mark I was fortunate enough to get on board just before they had put it all on hold. I’m on a compassionate use path with them which is good but I’m not sure how much they have done in this area. I know they plan to. It’s too bad that we have all of this government stimulus funding going, in some cases, to what I view as questionable initiatives/objectives when there are all kinds of needs that have to be met and cannot be without that funding.

I wish I could be of assistance. My best advice, however, is to get in touch with Linda Liau (sp?) at UCLA. She runs their trial and is very on top of this.

Mark

]]> By: Joanne http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-312 Joanne Wed, 10 Jun 2009 02:47:29 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-312 Hi Mark I'm so glad your doing well. I have a sister diagnosed with GBM and have tried to get her on the DCVax trial as thi seems very promising. I contacted several locations and was told that the trial is on hold. I emailed Northwest Bitherapeutics, no response. Can you give me any info? What site are you receiving your vaccine? Hi Mark

I’m so glad your doing well. I have a sister diagnosed with GBM and have tried to get her on the DCVax trial as thi seems very promising.

I contacted several locations and was told that the trial is on hold. I emailed Northwest Bitherapeutics, no response.

Can you give me any info? What site are you receiving your vaccine?

]]> By: Mark http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-296 Mark Thu, 07 May 2009 17:54:30 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-296 Keith, Thanks for your note and insight. Thus far, everything seems to be going well. I haven't experienced any issues that would indicate a reaction to the vaccine. Your comments regarding tumor growth after starting immunotherapy are interesting. Having gamma knife surgery in March followed by this vaccine treatment makes for an interesting goose chase - I also take a few other drugs. It could be growth but could also be brain swelling resulting from the gamma knife surgery. Whatever the case, the frequency of my seizures has increased. Thanks Keith Keith,

Thanks for your note and insight. Thus far, everything seems to be going well. I haven’t experienced any issues that would indicate a reaction to the vaccine. Your comments regarding tumor growth after starting immunotherapy are interesting. Having gamma knife surgery in March followed by this vaccine treatment makes for an interesting goose chase – I also take a few other drugs. It could be growth but could also be brain swelling resulting from the gamma knife surgery.

Whatever the case, the frequency of my seizures has increased.

Thanks Keith

]]> By: Keith http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-293 Keith Thu, 07 May 2009 00:22:29 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-293 Mark, Thanks for continuing to update your blog concerning your vaccine regimen. I work in the field and have been excited to hear the "blow by blow" of your dendritic cell treatment. I wondered if you had experienced any adverse reactions at the injection site as you've received your second and third treatments? Any redness or swelling there? This could be a sign of an improving immune response to the vaccine. Maybe they've done something else to look for a response to the vaccine? Just curious, if you're willing to share. I also wanted to pass along that with immunotherapies, it is common to see a period of rapid tumor growth after the start of treatment. Don't be discouraged if this is the case. From what I've read and observed, most of the patients that respond will go through this phase before the immune system reels in the tumor. Keep fightin' the good fight... Mark,

Thanks for continuing to update your blog concerning your vaccine regimen. I work in the field and have been excited to hear the “blow by blow” of your dendritic cell treatment.

I wondered if you had experienced any adverse reactions at the injection site as you’ve received your second and third treatments? Any redness or swelling there? This could be a sign of an improving immune response to the vaccine. Maybe they’ve done something else to look for a response to the vaccine? Just curious, if you’re willing to share.

I also wanted to pass along that with immunotherapies, it is common to see a period of rapid tumor growth after the start of treatment. Don’t be discouraged if this is the case. From what I’ve read and observed, most of the patients that respond will go through this phase before the immune system reels in the tumor.

Keep fightin’ the good fight…

]]> By: "RaSof" http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-289 "RaSof" Thu, 30 Apr 2009 08:08:24 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-289 I just read your post and most of the "about me" section and just wanted to say continue to be strong. It is wonderful news that everything is going great so far. No matter what life throws your way, remember to stay as strong as you can. You can beat this! I wish you all the luck in the future and thanks so much for sharing your story with us! I just read your post and most of the “about me” section and just wanted to say continue to be strong. It is wonderful news that everything is going great so far. No matter what life throws your way, remember to stay as strong as you can. You can beat this! I wish you all the luck in the future and thanks so much for sharing your story with us!

]]> By: "RaSof" http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-288 "RaSof" Thu, 30 Apr 2009 07:55:33 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-288 This is great news!! I hope things continue to go well for you. Always remember to stay strong no matter what life brings your way. I wish you the best of luck with everything that's going on right now. Take it one day at a time and everything will get better! --"RaSof" This is great news!! I hope things continue to go well for you. Always remember to stay strong no matter what life brings your way. I wish you the best of luck with everything that’s going on right now. Take it one day at a time and everything will get better!

–”RaSof”

]]> By: Mark http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-286 Mark Thu, 23 Apr 2009 01:11:49 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-286 Thank you. As is the case with anything, it's a matter of finding a solution or altering the existing. Thanks for your support. Thank you. As is the case with anything, it’s a matter of finding a solution or altering the existing. Thanks for your support.

]]> By: Barbara http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/comment-page-1/#comment-285 Barbara Wed, 22 Apr 2009 19:50:16 +0000 http://www.markmillermusic.org/blog/2009/04/22/third-vaccine-treatment/#comment-285 That is wonderful news, Mark! I know you and your team will get something worked out and get the seizure issues ironed out. We have faith :) That is wonderful news, Mark!

I know you and your team will get something worked out and get the seizure issues ironed out. We have faith :)

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