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I haven’t posted for a bit.  I’ve been trying to balance out my seizure meds.  The second medication I was prescribed raised the levels of another medication I was taking so we had to back off the dosing of the new med.  I started having some double vision – this is the same condition that led to the 911 call some time ago.  So far, backing down the med has helped and I haven’t had a seizure and my vision seems ok.

I will be folding Avastin back into the mix.  I will have labs today and start tomorrow with an infusion.  You may recall this is not a drug that will pull down my immune system.  We are just throwing whatever we can at this. The vaccine seems to be helping fatigue for sure.  My current issue, however deals with walking and weakness on the left side.  I’ve regressed in this area so I am going back to physical therapy for conditioning.  It’s just something that has to be done.  My heel striking is ok but I’ve started having a roll in my foot when walking and I’m hyper-extending my left leg when walking.

Aidan and I have been having a good time playing bball.  He loves to play horse.  I can jump about as high as Keegan!  But, I can get out there and shoot and do pretty well.  I’m just spending time with him and at night reading and talking is great.  Keegan and I have some fun but at 7, Aidan can really whip a football and it’s really fun!

More to come…

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