Blogging in B Minor

Has anyone had this summer flu/cold that is going around?  I’m sure a lot hands went up.  It’s bad!  Especially if your white cell count is consistently low.  I was supposed to have an avastin infusion last Thursday but I took most of that day off and all of Friday and slept.  There isn’t much else you can do.  Today is the first day I have felt better with some good energy.  I’m going to see if I can set that up this week. 

Avastin, because it cuts off the blood supply to the tumor, can not only work on slowing the tumor’s growth but can also help with brain swelling.  As I’ve posted, I’ve had some issues with focal seizures on the left side since my gamma knife surgery so this can help lessen these in theory.

I am still juggling meds to control seizures.  I had a few late last week and one in the middle of the night that woke me – that was new.  It was like someone shook me!  It was like all the others though.  So we added back in a med that gave me a bit of vision issues last time but I’m taking it every other day and at a lower dose.  I started this on Friday.

My son Aidan came home the other day and said he had a Father’s Day present for me and asked “Can I give this to you now and then we can do it again on Father’s Day”?  Sure.  First he made this great card – a picture of him in an over-sized suit jacket and a tie with a caption that read “this is what my dad wears to work” and then a note that read “Thanks Dad for making the money for our family to live here.  Your the best dad.  I love you”.  SO FUNNY!!  The picture is priceless.  Then, the present is a river rock that probably weighs about 5 pounds – no kidding!  It’s painted brown and with black paint he painted “I love you Dad”.  Now, I never in my professional career found a reason to use paper weights.  It’s not like people are working on rooftops or in the middle of a sidewalk.  What are they supposed to do?  But, I have a government issued, Aidan-reconditioned paper weight in case a wind storm hits our high-rise and I don’t have windows anymore!

This week hopefully I can have my Avastin infusion.  I’ll have an MRI in another 5-6 weeks I believe – don’t pay much attention anymore.  Just try to stay in today and live life.

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