Treatment Update and Concerts
Chemotherapy September 22nd, 2009
Email This Post
Print This Post
I haven’t posted for a bit – just continuing treatment and spending time with family. Things are good. On the medical front, I had my bi-weekly infusion last Thursday and met with my neuro-oncologist. I’m continuing with physical therapy every Wednesday and working hard to strengthen my left leg. It’s still weak but working it is helping a lot. I had a new brace made and that is also helping. I wear the brace every other day as to not rely upon it too much.
When talking to my neuro-oncologist, I learned that I do not have 3 years of my experimental vaccine left, only enough for 4 more “boosters” which are 16 weeks apart. 16 week intervals are a bit long for someone with a GBM. This was a huge delta. Turns out the initial 3 year estimate was not from Cognate, the company that actually controls and manufactures the vaccine. Anyway, since I’m not in a trial per se, we can use it as we see fit, so if I need to tighten this up we can. I can pull it off the shelf I can. Again, not much I can do about it so I can’t and won’t get stuck here. It’s up to God.
Our son Aidan is playing soccer and I’m doing some assistant coaching again. I stumble around a bit but can still kick with the right leg if I plant my left just right. It’s awkward but being on the field with all the kids is rewarding! Our son is doing great – he scored his first goal of the year on Saturday. He was thrilled!
On another topic, I went last night and saw George Winston play live. Talk about feeling inferior as a musician! For those that are unfamiliar, he is an amazing pianist. I have embedded one of his pieces below called Blossom in Meadow. It was an absolutely amazing experience seeing him live in a small venue. We were 10 rows back stage left (looking at the stage) so his hands were in plain view. How wonderful.
Also, over the weekend there was an equally amazing guitarist at Bayside Church, our home church. His name is Josh Wilson. His acoustic guitar playing using delayed effects is so unique – nothing like it. This is his rendition of Amazing Grace. This one you have to head to YouTube to see.
http://www.youtube.com/watch?v=kd4PBZgxCB4&feature=related
I hope you enjoy all of this and I pray that all of you are doing well.
Subscribe by Email 
RSS Subscription
on 
on 
I love George Winston! How lucky you were to see him perform. You must have sat there in amazement. That’s great that you are feeling better and things are going so well. I love good news!