http://www.markmillermusic.org/blog/2010/01/05/january-5-2010-update/ a brain tumor story. Thu, 17 Nov 2011 00:59:25 -0600 http://wordpress.org/?v=2.9.1 hourly 1 http://www.markmillermusic.org/blog/2010/01/05/january-5-2010-update/comment-page-1/#comment-408 Vivian Wed, 06 Jan 2010 15:15:01 +0000 http://www.markmillermusic.org/blog/2010/01/05/january-5-2010-update/#comment-408 Oh Mark, I am so sad that you are experiencing yet another HURDLE! KEEP FIGHTING!!! And get those second and third opinions. Have you considered Dr. Henry Friedman at Duke? I saw him several years ago and was so impressed and of course he and the Brain Center at Duke have an outstanding reputation. David Bailey (http://www.davidmbailey.com/home.html) another musician with a GBM who was given only 6 months to live 13 years ago is being treated by Dr. Friedman. I wrote primarily to tell you that last fall when I had necrosis/edema from radiation near the motor center and was nearly incapacitated, I used the Windows Speech Recognition program that came with Vista. It was AMAZING. From the first moment I sat down, I was using it, with almost no errors. Like you, I had some use of my left hand, so could correct the occasional error. It made my life during recovery bearable - to be able to communicate with family and friends and to my support group was my lifeline. Fortunately, with high doses of Decadron, the edema subsided, I entered therapy, and today am almost back to normal. Oh Mark, I am so sad that you are experiencing yet another HURDLE! KEEP FIGHTING!!! And get those second and third opinions. Have you considered Dr. Henry Friedman at Duke? I saw him several years ago and was so impressed and of course he and the Brain Center at Duke have an outstanding reputation. David Bailey (http://www.davidmbailey.com/home.html) another musician with a GBM who was given only 6 months to live 13 years ago is being treated by Dr. Friedman. I wrote primarily to tell you that last fall when I had necrosis/edema from radiation near the motor center and was nearly incapacitated, I used the Windows Speech Recognition program that came with Vista. It was AMAZING. From the first moment I sat down, I was using it, with almost no errors. Like you, I had some use of my left hand, so could correct the occasional error. It made my life during recovery bearable – to be able to communicate with family and friends and to my support group was my lifeline. Fortunately, with high doses of Decadron, the edema subsided, I entered therapy, and today am almost back to normal.

]]> http://www.markmillermusic.org/blog/2010/01/05/january-5-2010-update/comment-page-1/#comment-407 Artie Tue, 05 Jan 2010 23:33:56 +0000 http://www.markmillermusic.org/blog/2010/01/05/january-5-2010-update/#comment-407 Mark, Just checking in on you and wanted you to know that I'm praying for you. As always your posts both inspire and force me to think a bit deeper than my comfort level...thanks. Praying you have a remarkable 2010. Mark,
Just checking in on you and wanted you to know that I’m praying for you. As always your posts both inspire and force me to think a bit deeper than my comfort level…thanks.
Praying you have a remarkable 2010.

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