Healthcare Conundrum
Press March 28th, 2010
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This situation is the heart-breaking reality of today’s state of affairs with regard to healthcare. She has the same tumor I have – a GBM. It kills. Most times quickly. I can’t imagine using a treatment modality that has been effective only to have it pulled because of some beaurocratic, arbitrary rule. I have had a cocktail of drugs and an experimental… treatment. I had stability on DCVax, a brain tumor vaccine and temodar but most have failed. This is unconscionable.
I think many of us in America aren’t happy with what has happened over the past several weeks in Washington D.C.. All we can do is look to God and know with complete faith and abandon that He is the rudder. We have too many God-given skills and knowledge as a people, coupled with compassion and an instinctual need to save lives, for politicians to destroy the human spirit’s drive for sucessfully treating people, performing research and driving for a cure.
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Mark, I saw this story on the Tumor Blast email. I was shocked. I hope you don’t have any plans on moving. We don’t. Marc goes on Medicare in Nov. We don’t know how the healthcare changes are going to affect us. I am really worried. Our private health care is great but very very expensive and the premium is going up again in July. We were looking forward to the Medicare plan for Marc. Now we don’t know what to expect. Do you have any insight or opinions as to what Disability Medicare will cover and not cover compared to private insurance? Hope you are doing well.
Stacey – Baton Rouge, LA
I wish I had info for you right now. I’m still trying to analyze it all, too. I’ll certainly post what
I find. It’s quite a mess based on some analysis I’ve read on both sides. I am praying for you and Marc…