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I spoke with my neuro-oncologist last night after leaving a message for her. I always ask for a CD with all of the images and know enough to be dangerous. I certainly know enough to catch certain things and I called her after seeing a particular area that looked like a new tumor.

Two new tumors! Sheesh. Come on now. When it rains it pours. When it pours, get a larger umbrella, right? Still. VERY disheartening and disappointing – Rach and I had a tough night.

There is progression with what was a small area to what is now a lesion measuring 4.5 cm by 3.1 cm by 4.6 cm. Particularly troubling to me is that there is increased involvement of the left corpus callosum. If it jumps to the left hemisphere then I can start having deficits on the right side of my body.

This behavior, not to sound unemotional and all clinical, is typical of an aggressive glioblastoma so we haven’t ever buried our heads in the sand regarding the potential reality here. However, there is a ton of fight here, it’s one day at a time and none of us are ever alone in this.

I personally walk with God. How people go about it is a personal choice. For me God is in the middle of everything – the air we breathe. He decides when it’s time. Until then, each day is a gift to spend time judiciously with my kids, family, friends and doing things that are fun! Next is a new search for trials/treatments for recurrent GBM. Starting back on Avastin in the meantime. Going in tommorow to talk strategy.

Here’s an image of the MRI. I made some notes to point out a few things related to one of the new lesions. Just click the image below to blow it up. The large area is the original tumor site. There is progression as it has recurred and grown in size based on what I know right now. I will have much more concise info tommorow

More to come. Prayers are appreciated – especially for the kids.

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