Today is my son Aidan’s birthday – 6 years old! His new favorite response to everything now that he is older is “I know”. Isn’t it awesome? Aidan, don’t throw that rock. “I know”. CRASH. Aidan, please don’t use the couch as your personal pommel horse. “I know”. BOUNCE. Anyway, he came bounding out of his room this morning as if he was having a party with cake at 6:30am. If he would have had a party horn it would have been blowing hard. Thank the Lord. Immediate questions – who’s coming over today? Will there be cake mom? Dad, you have a tie on – aren’t you going to stay home?? Of course we explained all of this (how Thursday would be) and had a great party for him at a waterpark with his friends a week and a half ago – and this weekend have something planned with the family, but TODAY is his birthday and he was determined to start it off right. So at 6:30 this morning, there we were – me in my tie, Rachael barely awake, Keegan drinking a bottle on her lap, the dogs still asleep and Aidan opening a present from his aunt and uncle. You have to love kids.
I had an appointment with my neurologist on Tuesday and it was a very good appointment. I had increased my dosage of Lamictal on a daily basis to make these very subtle seizures presenting in my left bicep disappear. So far, I’ve been pretty successful in chasing them down. No one likes to chase a problem with meds but in this case, we are not a) switching to another medication and b) the problem is not significant at all. So, it seems to be addressing it. As I’ve explained, it is almost like a small muscle spasm. Oh well – I’m dealing with it. I’ve sensed slight weakness on my left side but I checked out just fine at my appointment – he didn’t detect any at all. So he set me up for an appointment at 6 months – Feb of 09. Sounds good to me.
There were a few moments in the past week where I reflected on everything and thought about what is happening, albeit subtle, coupled with the latest MRI. Regardless of how much I have turned all of this over, my faith and peace I pray for, I can sometimes fall into that trap. I made correlations between the MRI not using the term “stable” anywhere in the final report coupled with small seizures and what I detect as slight weakness from time to time. Mr. Logic takes over and says that these all are tied together and mean something. However, when I speak with a doctor, like I did on Tuesday and he says a) I don’t detect any weakness, b) your report indicated some enhancement – that means the blood brain barrier has broken down and that naturally happens – it’s not really a concern and c) seizures don’t always suggest anything is occurring with regard to a change in a brain tumor, you get straightened out. For the most part I have always let all of this be but it creeps in mostly when there are physical reminders.
Tomorrow I have my regular checkup with my neuro-oncologist which should be uneventful. Other than that, getting back into the groove after a great vacation!
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