Keegan is doing really good. He had a bit of an issue with jaundice for several days that we were monitoring closely but that seems to be ok at this point. We took him to the doctor just to have him checked out. Everything looks great but he had us go to the lab on Wednesday for the counts - they came back a little high so we went back again yesterday and they are stable so all is well.
Rachael is doing ok - she’s starting to get a bit of her strength back and just getting used to the new schedule. Even though we have done this before, it’s been almost five years! So, it’s kind of new again. It’s a little bit more complicated this time around too because of my condition. My seizures are subsiding, mainly because I’m getting rest and Rachael has agreed that since she needs to be up anyway to feed Keegan that I may as well sleep. How nice is that? 
I have to say though, I had seizures each day (small focal seizures, totally manageable) but the first night I had I slept for 6 hours or so I didn’t have one the following day. We both agreed this is worth it and I’m also trying to prepare myself for the chemo and radiation so we are making sacrafices. She is being so supportive. To compensate for what she is enduring at night, during the day I’m taking care of all the meals and handling his needs so she can sleep. On the 30th I start chemo and radiation which is really why I’m off work in addition to the surgery I had on the 29th of June anyway so we’ll see how that impacts things but all in all we are walking through it all and have a lot of support. More to come and I’ll be posting more pictures when I can.
Brain Tumor Treatment
I’ve been doing a lot of research on treatment options and have uncovered some interesting information. Of course I’m not ready to be as bold as some people have and completely buck the medical science world and forego radiation and chemotherapy - that would be foolish in my view but some people have actually done this. However, there are some natural therapies that seem to be very promising. In particular, a doctor named Dr. Johanna Budwig from Germany made some very important discoveries related to the use of flaxseed oil.
Dr. Budwig found that the blood of seriously ill cancer patients was deficient in certain important essential ingredients which included substances called phosphatides and lipoproteins, while the blood of a healthy person always contains sufficient quantities of these essential ingredients.
She found that when these natural ingredients where replaced over approximately a three month period, tumors gradually receded, weakness and anemia disappeared and life energy was restored. Symptoms of cancer, liver dysfunction and diabetes were alleviated. Dr. Budwig then discovered an all natural way for people to replace those essential ingredients their bodies so desperately needed in their daily diet. By simply eating a combination of just two natural and delicious foods not only can cancer be prevented but in case after case it was actually cured. (These two natural foods, organic flax seed oil & cottage cheese) must be eaten together to be effective since one triggers the properties of the other to be released.)
In doing more research, I found a site http://www.flaxoflife.com/ that contains the amazing story of Tom Rolland, a man who was diagnosed with a GBM and utilized this method along with some other supplements to great success. His regimen is something I am going to apply to my treatment plan and has been covered in a book I am reading that covers a range of alternative treatments, some that originate in the world of medical science and some that do not.
The point to all of this is that you have to attack this from all angles. You can’t just sit back and rely on the oncologists to prescribe radiation and chemotherapy, accept that as your treatment and hope it all works out for the best. I have a binder full of material, it’s all assembled and I’m putting my own treatment plan together. This is but one small component but I wanted to place a post online about it because it’s received so much notoriety it’s worth mentioning.
I will be starting chemo and radiation on the 30th. I’m not sure what to expect - I do have ideas but everyone is different so although I have read up I’m trying not to read “too” much into this. Some people say it’s awful, others breeze through it. I won’t know until I do it and I’m in it. I have a strategy diet-wise and have prepared myself psychologically, just as I did for the surgery, as best that I can so at this point it’s just as it has been with everything else I have had to do since this has all started - walk through it. This has all been a test of endurance but as I go through each phase of this, I get stronger and it actually does get easier to deal with. When you think about it, after being told that you have a tumor, going through months of scans, told you have to have brain biopsy, then getting these harsh second/third opinions, facing surgery with neuro deficits, having a diagnosis of brain cancer, etc. etc, there is really not much that can bother me! You could tell me just about anything and just about anything could happen in my life and it wouldn’t phase me much. Flat tire on the car? Garage catches on fire? Oh well - there are ways to take of these things. Seriously - I have to say that this has all changed my perspective and there is a part of me that does wish I could have had this perspective on life long ago but I guess we just aren’t built this way. I’ve always had gratitude and have been grateful for the blessings in my life but I just don’t think we are fully capable of realizing how fragile our lives are until we are faced with something like this. Maybe it’s just me.
More to come.
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Tags: Brain Tumor 
, cancer , infant , Keegan , My Story , oligoastrocytoma , seizure
